thankyou for your replys, its my grandaughter who is 12yrs old, we also had the docters who didnt have a clue what it was, we even had one a&e docter said it was cramp !!!!!.. we spent a year going round and round getting no where, till we saw one dr in london who said yep she got r.s.d. go home she will be fine its just a one off, that was last year and now its back again, doesnt help that she also has e.d.s. which ia all so something not many docters know about..not got much faith left in the medical services so wanted to try to find other kids with the same problems.

thankyou for your help and good advice xxx