Member
|
|
Join Date: Jul 2012
Posts: 104
|
|
Member
Join Date: Jul 2012
Posts: 104
|
hi, yes the doctors just started me on predisone i think the day after i was admitted here. 60 mg, it was 2 weeks ago i began predisone. today i have my 4th plasmaphersis. friday is my 5th. i can feel the difference but not so much in my speech and swallowing. throughout this whole year i have had trouble with speaking and swallowing. it was the asperation phemonia that brought me here. litterly killed me 2 times. i was on the incubator for 1 1/2 weeks. an ngo tube in my nose, out for 4 days that i do not remember. my breathing is 100% on my own now. they tried to put a feeding tube in but my stomach is in the wrong spot so if i go that way i need invasive surgury. its been now 4 weeks that i have not eaten on my own. what i need is a good speech therapyst to help me. start off small. they are feeding me through a nose tube still. my throat is swollen slightly they say. for a while they took away mestinon, it helps me swallow and talk and see good. back on it finally, o u need it. lol...i feel like a lab rat here. in bed because they dont want me up on my own. i can walk, wash my hair. only issues left swallowing and speaking. so im praying the 5th plasma will make me whole again. how long before anyone notices a difference?
|