Hey everyone. I'm still here
I have a pain psychologist, a case manager, friends and family, a good GP..but am still getting nowhere. However..I just got approved for the fentynl patch and will be switching to that tomorrow. Honestly..if it doesn't work..there is nothing better.
I had to put my YMCA pass on hold because I'm in so much debt. I also don't do public pools. :/

My spine and feet are on fire..feels like my body is not even my own with all the other pains, weakness, etc. I'm only comfortable on my couch with ice packs on me.
One day at a time eh...
If the patch helps more and disability approves me..I stand a chance..but things don't seem to go my way
I'll let you folks know. I talked to the psychologist about the suicidal feelings . I've already called a crisis line..but at the end of the day my body is still on fire so no amount of talking in the world helps that!!

I hope that one day there will be better treatment for PN. I'm on the first line medications and am still. In agony..so that is not so impressive is it!!!
I don't even know the cause yet...that could take months.
I'm really rambling..I'm sorry.

I appreciate the support. Love to all of my fellow sufferers