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Old 04-03-2013, 08:30 PM
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Djhasty Djhasty is offline
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Join Date: Nov 2012
Location: Omaha Nebraska
Posts: 142
10 yr Member
Djhasty Djhasty is offline
Member
Djhasty's Avatar
 
Join Date: Nov 2012
Location: Omaha Nebraska
Posts: 142
10 yr Member
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musicgirl

Yes. I still have boughts with severe spasticity and Dystonia. At one point, my spasticity was so severe it permanently curled my feet inward and toes under severely, and legs inward to some degree too (as noted by jpcrps). I have been retrofitted with a baclofen pump that takes care of the spasms for the most part. Though, My Neurologist is still adjusting it each time I go in. I did have to undergo an inpatient trial before the neuro surgeon would install it. The spasms are pretty persistent. I still have them; though, there has been considerable improvement. My Neurologist also added tizanidine 4mg at night to my prescription regimen. I am allowed another 4 mg if necessary. The tizanidine knocks me for a loop. That is why I only take it at night. Even with, I still only sleep 2-3 hours. I watch a lot of late night infomercials. ShamWow! For pain I am on the fentanyl patch 150 mcg and oxicodone 5 mg (up to 2 tablets) for breakthrough pain.

I cannot get in and out of the tub. The Epsom salts are out. I do have an awesome shower with multiple jets. Sometimes that helps. Usually, it just wears me out.

I do use the tegaderm over my fentanyl patches as Morgan has suggested. I get mine off Amazon at a fairly reasonable price. http://www.amazon.com/Tegaderm-Trans..._sim_sbs_hpc_1

As far as the baclofen pump is concerned, (Others please correct me if I am wrong) I believe I was told the medication is more affective at a lower dose when it is administered directly through the spine. Orally I was at the maximum dose. With the pump, I have room for higher adjustments. Also it can be directed to just the lower part of my body by picking specific vertebrae in the spine. So I don't have some of the negative side affects.

I am hoping you will achieve relief soon.
I am hoping for better days ahead for you and for all of us that suffer.
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Djhasty
- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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