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Member
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Member
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Living within boundaries
So true Mia. I find that as long as I stay within the boundaries of what I know I can do that I am ok. When I go out of these, I have major problems. I try to check the boundaries often to see if they have expanded any and they have very slowly. I am still extremely limited but have come from being fully bedridden to being able to dress and go out for a few hours a couple times a week. I am grateful for this. I am slowly becoming less housebound. Don't think I will ever make it back to work but will keep trying. At least now I am actually living life again even if it is limited. I have come far. I also am recovering from liver and kidney failure so I have come far. Was very close to dead.
Slow and sure wins the race. I am at turtle speed but keeping on keeping on.
Brain
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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