I do know a bit about trigeminal Neuralgia. Have you seen a good neurologist, not just an ENT?. In this months issue of Discover magazine there is a very well written ariticle about this condition. There is a surgery availiable which neurosurgeons do. The article will tell you in detain about this proceedure. Only a neurologist can really tell you if you are a candidate for it. I know from speaking to others that the pain is awful. don't give up and just accept the DX. Try to find that good physician that may be able to end the pain. There is hope for that. ginnie