Hi Kathy.
Im also new to this. Sleep is also a huge issue for me. My RSD started in my left hand and has spread to all limbs to some degree and my left hip and shoulder are also effected. Not sure if its all of my back on the left, it could just be from lying in bed too long, but we will see. The spread is new and im still getting used to it. I hate it!!!

I have read that where the nerves reach the brain is an area where things like sleep, focus and short term memory work. I dont understand exactly but it was enough to make me realise why sleep was such an issue even when my pain was under control. and i guess how it spreads. thats the thin everyone does not understand. My injury was in my hand, but its my foot hurting????? When i have a pain flare i suffer from insomnia. at first i thought it was the pain, but even once thats settled its still the same. How many nights can we go with out sleep????

Im also starting to feel that blankets are too heavy for my left leg and hip. My bedding is quite minimal so its crazy. so far clothing isnt an issue but im only wearing soft cottons. Im scared of not being able to wear bras. Im not built for that.

Im on Amitriptylene and codene but when its bad it seems to be not enough and the Amitriptylene only gave me a good nights sleep the first night. I remember it being heaven. I tryed sleeping pills this week. I hated to go there because an old housemate used to use them to attempt suicide. But i was desprate and I asked the doctor. They didnt do much and i was only falling asleep hours later. Today it was 1.30pm when i managed to wake up and i felt like a zombie. I doubt ill use them again, but who knows. I also felt like my face was swollen and im scared to up my dose, even with consent from the dr.

Im trying to get into see a pain clinic, at first i didnt think i was at the stage of needing one, but I know now i do.

I have tryed Epsom Salt baths and I can say it was lovely and I had a few hours relief. if it wasnt 2am (Australia) and i wouldnt wake everyone up, I would have one now - Im having the worst flare so far. OUCH!!!! I read that lavender and rose hip oil is great in your epsom bath. I think i might have read it on here. Thanks who ever posted that. Its wonderful and smells so soothing. I use a fair amount. I read that it works because the skin absorbs the magnesium and thats what relieves the pain. So i like to use a fair amount. And if you buy in bulk its really cheap.

Diet is another thing you can look at. There are threads on here with information. Gluten free is popular and foods with anti inflamatory properties are good. Also some vitimins like C,D and b12. Plus Amino Acids are apparently a good thing to look into.

I really hope you get some relief. This is such a cruel thing. but lucky we are all in it together and have places like this to chat. I would be lost with out the internet. I hope this makes sence, Im really lacking sleep