Quote:
Originally Posted by firegirl
My pulmonologist told me about that exact same study. Apparently that is either the only or one of the only studies done yet. I'm kinda skeptical just bc thats such a small study. I did some reading up on it on forums & got the impression that it can be helpful during the beginning of RSD & can reduce pain a few points, but not a miracle & doesnt work once you have had RSD long. I hope I am wrong & that it works. I posted about this too, maybe you can find others responses on there. Hope it works for you.
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Dear One,
It works!
IvIg, Privogen brand only, at 20grams every 21 days, cured the severe RSD/CRPS I lived with for over 30 years. I am medication free, pain free, and without the constant involuntary muscle twitching and cramping.
I also receive Iv Glutathione, because testing showed that I was not producing any. It helps a lot, but the IvIg is what took the disease away.
It is important to have a good brand of IvIg - one made without sucrose. My doctor has used Privogen for many years without any trouble for any patients.
It is also important to be tested for IgG and subclasses, as well as IgA. The IgA levels are important, because people with low IgA levels are unable to tolerate IvIg treatment.
I wish you success in healing!!!!