I have gone through the dystonia also in my feet, hands, and knees you can watch my youtube video undeer my years with RSD
What got my feet to straighten and knees was a trial SCS with vigorous PT and OT. For my hands it took the ketamine to help with that. I am so sorry for your daughter if there is eve anything I can help with please ask. I got my RSD when I was 16 and know how hard it can be.

Samantha