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Old 04-05-2013, 06:05 AM
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KarenEVP KarenEVP is offline
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Join Date: Mar 2013
Posts: 135
10 yr Member
KarenEVP KarenEVP is offline
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KarenEVP's Avatar
 
Join Date: Mar 2013
Posts: 135
10 yr Member
Default My second opinion...

I went for my second opinion - I waited a month to get in to see this neurologist, Doctor C.

He looked through all of the reports I had from Doctor A (first neurologist), results of the - what do you call it - nerve conduction test?, etc...

But when I went in for my apt., mostly what I had to tell Doc C was that I found a site on the internet where ppl are real knowledgeable (Mrs. D, Wings, and some others I've mentioned before) and that I took thier advice - (biggest being Vitamin D 5000 iu per day to solve deficiency and Benfotiamine to solve the parathesia -whole body itching and pricks)... and that when the leg cramps let up and the itching stopped - that tears of joy were welling up in my eyes from the relief of it all ...

After my whole story - he said the results of my test are so borderline that he doubts I even have peripheral neuropathy - but stated that he would not have ruled out MS so quickly and would have wanted a brain - oh what do you call it... MRI. (this as you can imagine did not make me feel all warm and fuzzy)

Then Doc C ordered additional tests... to re check Vitamin D level now and some other vitamins - he was interested in B12 he mentioned - just in case it is pn from vitamin deficiencies... plus a fasting glucose level ... and then he told me he'd call me with the result and recommendations... and to share the results of the test with Doc A.
(The only thing Doc A had said about vitamins at all was take B6 100mg daily, period.)

It seemed to me like Doc C had great respect for my first doc and didn't want to step on his toes, especially since I was feeling better - but I explained - But Google helped me more than Doctor A did! (Because for a while, I just kept going to the computer, not even knowing what I was going to search for ... until I stumbled into here, eventually)

But then he said, if I get into more problems, I can just schedule another apt. with him if I want to. So that is where it was left.

To be fair- I hadn't showed the first doc, Doc A as much lab work as I showed the second Doc, Doc C - but only because I didn't know that vitamins and such mattered yet... (cause I had not been here yet and become educated) but then again, Doc A did not bother to check for any vitamin shortages either so....

Doc C also made a comment I want to share with you guys... "I see you figured a lot of it out by yourself." Well, actually I didn't, you guys already did - but Doc C shares agreement with what you think I can tell whereas I'm not sure Doc A does.

Seek and ye shall find (not a religious person, but I like this one)

Doc C also mentioned - Gee you're kinda' young for pn (49) but it's possible you just got unlucky (to the effect of) ..
He also said I was a lovely patient to see - and I'm thinking to myself, that's because I'm in here with good news and not in creepy pain, itching and in a complete panic anymore LOL... Thanks to HERE.

I told Doc C - I'm not sayin' it's 'gone.' I still have a cramp here, a tingle there, brief light burning here and there on occassion - but my leg is no longer weak when I use it a lot - that scary problem is 100% GONE. I can work out 85% of the time as long as I want now without feeling like I have to worry that Im overworking my leg(s). When I go to bed at night, foot tingling is either absent or nearly down to nothing... Dang - maybe I should put up my tips 'cause I did find out a couple on my own.... I no longer have a "ball and chain' leg to drag around, that is 100% GONE. So, no, it's not gone, I am still more tired at night than I used to be ... but I am sooooooo much better.

Last edited by KarenEVP; 04-05-2013 at 07:06 AM.
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"Thanks for this!" says:
hopeful (04-05-2013), mrsD (04-05-2013)