Wow, It sounds like the med is not reacting well with you. Scary when your body is in controll and you don't know what is going on. I started Ampyra just this week and only have had one time that I was a little dizzy. I noticed a huge improvement with my walking the first day. My legs don't have that heavy, weighted down feeling and I don't feel like I'm struggling as much, to try to walk. My balance is also better, even with the little dizzy feeling. I also had a sudden on set of stomach probelms two says ago but it only lasted for 24 hours, so I'm blaming it on the flu bug. I wish you well.
Quote:
Originally Posted by Lynn
Ok so the fun stuff is definitely over....and reality is starting to bite.
I am thinking the cure is worse than the complaint and I need to stop this now.
It would seem I am fine iwth the night tablet - because I am asleep when the main effects kick in, but today has been spectacularly nuts! It seems that about three three to four hours after I take this wonder drug, I have some kind of reaction.
Today, I was really scared. I nearly lost control of my bowels in a busy shopping centre, then (shortly after, but 100 kilometres from home) when supervising my learner driver daughter, trying to get home, my face and mouth were tingling like crazy, then my my mouth and my eyes (and eyelids) started moving and twitching like crazy. It lasted for what felt like ages.
I didn't know whether I needed to throw up, use the bathroom, or what before the twitching started. My head was spinning, my eyes and mouth started flickering, I was trying to tell my gorgeous DD what to do if I had a full on seizure (on a country road in the middle of nowhere), I was scared, and I had been hyperventilating when I felt so sick and dizzy, which certainly wouldn't have helped in terms of tingling, but the flickering and twitching came on more-so when I had controlled my breathing.
So.......I will be calling my neuro's office first thing on Monday to see what they have to say. No more day time tablets till I do though.
Interesting, but the timing is lousy!
|