Quote:
Originally Posted by EricP
How does it hit that hard? Right off the start you're where many of us will take years to get too. What does this mean for the future? Is it progressing any further and is it stable right now?
Sorry if my questions are invasive...I'm, just trying to learn all I can about this BS.
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Eric, first off I am not bothered at all by questions. I was dx'ed with primary progressive as soon as got a dx, so I am not in the majority group.
At times I feel that the news and even the MS organizations do a disservice by showing actors, politicians wives, ect. that may have a milder form, or a lot of cash to handle their situation? Perhaps if they focused more on those that don't people would have a better grasp of the disease?
I was 52 when it hit, I was able to retire, and had really done a lot of things of personal interest to me in life, so it is just a new source of constant adjustment for me. One of the many learning experiences in life I could have done without, but there were no guarantees at birth?
Chit happens? so it seems does MS. I was never much of a complainer, whiner, I just take things as they come and deal with them, or at least try to get some laughs from them!
I diagnosed myself thru my own research into the name of an illness the doctors seemed unable to get labeled correctly. It was confirmed by a specialist after I got rid of the quacks! A lot of the things in the differential diagnosis seemed a lot worse, and I am still around to have my laughs!
It was deemed a pretty aggressive onset and the progression continues,

oh no! I'm going to die? Heck we all do sooner or later, I want to go out laughing!