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Old 04-08-2013, 08:48 AM
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pegleg pegleg is offline
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Join Date: Sep 2006
Location: Tennessee
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pegleg pegleg is offline
Senior Member
pegleg's Avatar
 
Join Date: Sep 2006
Location: Tennessee
Posts: 1,213
15 yr Member
Default Thanks,Bob . . . But

Thank you, Bob. Although this appears to be a well-established petition, similar efforts have been initiated for years. However, this is one of the first global petitions that I have seen. I am not certain if this petition would have as much impact as one might be that is directed through a large body such as the American Academy of Neurology (AAN) or even the American Medical Association (AMA); but I'm sure you have researched this well. Just for the record, it takes about 10,000 signatures to attract attention, so our work is cut out for us!

My intent with this topic/thread was to emphasize how absolutely imperative it is for people with Parkinson's to sign up for clinical trials, especially when only 1 in 10 people with Parkinson's volunteer for a trial. FOX TRIALS HAS MADE A GALLANT EFFORT IN SOLICITATING PARTICIPATION IN CLINICAL TRIALS. Please visit their website:
https://www.michaeljfox.org/foundation/faq.html

I am VERY supportive of any effort to report trial results and to hasten such reporting. It was ludicrous for me, as a participant in the trial in which I participated, to have to wait from July, 2008 (when the trial was halted) until the results were actually made public.*
Here is a news release from Fox Trials
https://www.michaeljfox.org/foundati...=76&category=3
*But the actual publication of results published in a refereed journal come 2-3 years later.
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"Thanks for this!" says:
ginnie (04-08-2013)