Quote:
Originally Posted by soccertese
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the ceregene gene therapy results will be out soon, lets hope they are good and some of us will have to decide if we want to be in their next trial if they can get funding.
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And if the results are bad, is it acceptable that the bad results be kept hidden, and only good results shown? Are Parkinson's organizations so feeble that they cannot insist that ALL results be published? Do we have to agree to accept that we offer up our living brains and bodies for experimentation, if the conclusions of the study are going to be deliberately falsified by hiding the negative results and promoting the positive results?
All it would take to solve this would be a requirement that all studies be registered before they start, and published after they are finished, Evidence-based science is mere deception - or let's call it witchcraft - if the evidence is cooked.
What this guy is asking for is not far-fetched. He is simply asking that the scientists, both Pharma and academic, refrain from blatant misconduct in the form of research fraud. I do not see why this is anti-Pharma, anti-free-entreprise, or anti-American; or why it would impede getting financing for trials; when all that is being asked is that the scientific truth be told.
This guy is saying that something needs to be fixed. I think that Parkinson's orgs should address the question; and at least insist that research funded by donations through them be conducted in an ethical manner, and that it be one of the conditions of the funding, that all results, good or bad, be published.
This guy is going to win his argument sooner or later:
http://www.ted.com/talks/ben_goldacr....html?c=540521
okay, try this one:
http://www.ted.com/talks/ben_goldacr....html?c=540521