I know how much pain you folk are in, but it's important that you be seeing someone who takes your pain seriously. There are a lot of medicnes that help with neuropathic pain, and they vary in side effects. In general, they are membrane stabilizers like lyrica or neurontin, antidepressants such as cymbalta or effexor, or even the ssris, sometimes a klonopin to calm things down, and then, when all else doesn't work, some need narcotics.

Are you folk being treated?

Also, when it comes to lying in bed in pain, I have this to suggest: Neuropathy hurts no more if you walk than if you lie in bed, but if you lie in bed you will lose use of muscles that aren't getting signals, gain weight and develop metabolic problems. It's really very important to keep moving, even with the pain. Find some sort of exercise and do it--walking a bit, yoga, tai chi, anything that keeps you using your muscles and keeps those nerves that can send signals doing so.

It may be hard advice to follow, but it's very important.