Have your doctors measured your cerebral spinal fluid (CSF) pressure? Elevated CSF pressure is common with Chiari malformations, and can produce persistent pain. If your CSF pressure is too high, you may need a shunt.
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Originally Posted by semoore
Hi all. When I was a freshman in high school (2009) I began to have a chronic headache all day, every day and it hasn't gone away. It is like a squeezing pressure. I have seen many doctors- neurologists, neurosurgeons, dentists etc. The Jefferson Headache Clinic in Philadelphia called it New Daily Persistant Headache, other dr's have just called it chronic daily headache. I was on Fioricet for several years which helped but they made me stop taking it, as it is addictive.
I also get frequent migraines on top of the daily headaches.
I have a Chiari malformation and a syrinx, but because of the nature of my headaches, the doctors say they are unrelated. Also, because I am able to function (I finished college, can work, etc), the doctors say I don't need surgery.
Just wanted to share and see if anyone had any advice. Thanks.
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