Junior Member
|
|
Join Date: Jan 2013
Posts: 10
|
|
Junior Member
Join Date: Jan 2013
Posts: 10
|
Small Fiber Neuropathy After Flu Vaccine? Advice Please
Hello. I am a 32 year old physician (radiologist) and am seeking advice on neuropathic symptoms which developed immediately after a flu vaccine in Oct 2012. I have had progressive burning pain involving upper/lower extremities, face, scalp and ears. I also developed tinnitus and sharp/stabbing pains in the pelvis. I have had an extensive negative neurologic/immunologic/rheumatologic workup. Negative labs (including all the labs listed on the Quest diagnostics site posted by Glenntaj), negative imaging (MRI of brain and total spine), negative EMGs and normal Therapath skin punch biopsies.
I was completely healthy prior to the vaccine. The neurologists I have seen at Duke feel that this is certainly a post-vaccine polyneuropathy, likely small fiber. My skin biopsy tests showed normal ENFD and normal sweat glands.
Currently, I am taking 900 mg neurontin (I don't think this helps much at all), 10 mg Lexapro (anxiety due to this condition) and 0.5 mg Ativan at bedtime to help sleep. Supplements include Vitamin D 5000 IU, Vitamin B12 (methylcobalamin) 1000 mcg, Acetyl-l-Carnitine 500 mg QD. I honestly don't like to take prescription meds but the pain is unbearable at times. The sharp stabbing pains in my pelvis (rectal and pubic regions) are often debilitating. I've even had GI and urology workups (including colonoscopy and CT scans of the abdomen and pelvis) all of which came back normal. No one can seem to figure this out and tie it all together. This has been very frustating - I am trying to work a near full time schedule. The constant pain with insomnia etc.. has lead to depression and anxiety. Often times I feel hopeless despite being a very spiritual person otherwise.
Any support/suggestions/advice would be greatly appreciated. Please note that most physicians have never heard of small fiber neuropathy. Thanks.
|