occlusions

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been diagnosed with tos and had rib ressection 3 weeks ago. what i am now curious about is more specific information on occluding vessels. after the usual tests that we have all endured, plus a few, it was discovered that both of my internal jugular veins were completely occluded in many positions, but always when arms were elevated. the extreme bulging and pressure in my head, face and neck during movement being the reason i sought treatment to begin with. having obvious occlusion of right and left subclavian veins the decision was made to do the rib ressection on my right side. now having had the surgery my right side my right arm has none if any symptoms at all. now for the bad part. my right phrenic nerve was [damaged] which has my diaphram elevated and paralyzed on the right side which means im breathing on one lung and sleeping with a machine to help me breath.sounds terrible huh, it gets worse. I still have to resolve the issues with the left side. and the problems with pressure that is unbearable still occures in my head,neck and face with any leaning forward or raising of the arms.I'm not making light of tos, i know how it can change someones total thoughts of life itself. I had never heard of tos,i didnt know that the way I've felt for years had a name. Now im in deep, I cant risk left side surgery, atleast not until i get something fixed with this nerve. a repeat would mean a respirator, and still the possibility of unresolved head problems. a machine at night is bad enough. I'm sorry I'm rambling but I'm stuck and frustrated and worried and yes a little scared. My dr. said that the condition with my jugular veins was so rare he or any of his partners had never encountered it before. someone please tell me that they have been through this and it will all work out just fine.