Thankyou for both your responses. Thankfully my specialist contacted my Nevro rep to suggest some programming, and as a result it is booked in for today :-) Hopefully with some tweaking I'll be able to progress and start to feel able to start doing some work (my work is happy for me to work from home for as much as I feel I can handle) and get more active like a walk around the block. Baby steps!

Has anyone else tried Lyrica before? I am on a relatively small dose and really feel, mmm its hard to explain sort of like I've been drinking, the giddy and fumbled talking! A friend actually thought I had been drinking when she came to visit and I had not! I'm finding it really hard to align my thoughts and words if that makes sense? My specialist wants me to keep persisting to see if this improves, I was hoping others may have had some experience with this.

Thanks again, its comforting to know that there are others out there who understand and are willing to help others :-)