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Old 04-09-2013, 08:42 PM
jkl626 jkl626 is offline
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Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
jkl626 jkl626 is offline
Member
 
Join Date: Mar 2012
Location: West L.A.
Posts: 581
10 yr Member
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Quote:
Originally Posted by fdupshoulders View Post
After nearly two years of horrifying pain, I think that I've finally been diagnosed with TOS. I am in Los Angeles and I'm now searching for a surgeon to help me. I know that vascular surgeons perform this often, but I really want a neurosurgeon to perform the operation. In my research, I've found only a few in this area that do the procedure (or at least advertise that they do) and I have no idea how to choose the right one, aside from a brief personal meeting/consult.

None of them accept insurance, they are all considered pioneers in the field, all of them have great reviews and then even more horror stories.

Dr. Sheldon Jordan

Dr. John Knight

Dr. Aaron Filler

Dr. A. Lee Dellon in Nevada & Maryland

Guidance? Aside from telling me to meet with all of them and see who seems the most compassionate and helpful? They each have $500-700 consult fees. Also, any ideas of price ranges of TOS surgeries?

Thanks
Hi fdup- just saw your post. I am in L.A. and went through all the dr's. I have also had symptoms for 2 years and 1 year diagnosed. Read my Thread:
JKL'S TOS Journey or How I am seeing all the doctors in L.A.

Most of these Dr's you listed are not surgeons- Better to look on the threads hee than to go by the internet. Dr. Jordan is one of my dr's. He is a good neuro and TOS pain dr. but expensive. I had the scalene block test and botox with him and I may do some other injections. I also see a pain dr. at Orthohealing in L.A. for Trigger pt injections. Have you done PT? I have had good luck with Dr. Ando in OC but he is far. i will be trying some new ones up here.

I saw all three surgeons here in L.A. last year and decided againt surgery for now. I saw Dr. Williams, Dr Filler and Dr. Jordan for Diagnosis -they are all TOS nonsurgical neurologists and decided to go with him. Dr. Knight is a hand surgeon and not a TOS specialist. I second Marcs opinion on Dr. Filler.

Surgeons here in L.A.:

Dr. Gelabart-UCLA
Dr. Ahn-Westwood
Dr. Mckenna-Cedars

In O.C.-Dr. Angle

San Diego- Dr. Brown
Dr. Braun-

These are all vascular surgeons except Dr. Brown. The neurologists only will do scalenectomy - and if there is any need to take out the first rib- they will have to get a vascular surgeon to come in. There was a patient on this forum who this happened to-

let us know how your appt goes.
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"Thanks for this!" says:
olecyn (04-18-2013)