Hey JKL thanks for the info. I just saw Dr. Brown today and he gave me my first official TOS diagnosis. He'd like to perform a scalenectomy and as you and others have said, won't do anything with the ribs. He said if he finds that something is going on with the ribs during surgery he will be able to do it, but will wait until the next surgery to do so. Yikes..
I'm seeing a vascular surgeon named Dr. Clark Fuller tomorrow and then Dr. Angle on Monday. Also Mayo Clinic just admitted me but the appointment isn't until May, so I'm going to see if there's anything I can do to get that bumped up.
Quote:
Originally Posted by jkl626
Hi fdup- just saw your post. I am in L.A. and went through all the dr's. I have also had symptoms for 2 years and 1 year diagnosed. Read my Thread:
JKL'S TOS Journey or How I am seeing all the doctors in L.A.
Most of these Dr's you listed are not surgeons- Better to look on the threads hee than to go by the internet. Dr. Jordan is one of my dr's. He is a good neuro and TOS pain dr. but expensive. I had the scalene block test and botox with him and I may do some other injections. I also see a pain dr. at Orthohealing in L.A. for Trigger pt injections. Have you done PT? I have had good luck with Dr. Ando in OC but he is far. i will be trying some new ones up here.
I saw all three surgeons here in L.A. last year and decided againt surgery for now. I saw Dr. Williams, Dr Filler and Dr. Jordan for Diagnosis -they are all TOS nonsurgical neurologists and decided to go with him. Dr. Knight is a hand surgeon and not a TOS specialist. I second Marcs opinion on Dr. Filler.
Surgeons here in L.A.:
Dr. Gelabart-UCLA
Dr. Ahn-Westwood
Dr. Mckenna-Cedars
In O.C.-Dr. Angle
San Diego- Dr. Brown
Dr. Braun-
These are all vascular surgeons except Dr. Brown. The neurologists only will do scalenectomy - and if there is any need to take out the first rib- they will have to get a vascular surgeon to come in. There was a patient on this forum who this happened to-
let us know how your appt goes.
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