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Member
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Member
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Hi,
I am sorry you are suffering with these symptoms. I would suggest a neurologist who is also a movement disorder specialist. Some of these symptoms sound Similar to my Dads. He was diagnosed with Parkinson's disease with dementia or Shy-Dragers. There are no tests that can confirm a diagnosis of either one of these diseases. They just take an educated guess according to your symptoms. With M.S they have tests that can identify that diagnosis for sure. I think it shows up on MRI. Possibly in blood work as well. I hope you can find a diagnosis soon and get the correct medication/treatments to start making you feel better. Do you think it is possible that you may have a sleep disorder? REM sleep behavior disorder (where you act out your dreams and most of them are violent) is what they call a pre-cursor to having Parkinson's Disease. I also have this REM sleep disorder as well as my dad. It is possible that I may have the same thing as him as it is hereditary but I do not have enough of the symptoms to be diagnosed with it yet. I understand how frustrating it is to try and get a diagnosis and try and figure out what kind of doctors you need to go to. Lee had great advise also. she is a wonderful, caring lady who has been helpful to me. i wish you the very best. Please keep us updated. Don't give up. There are answers.
Love,
Brain 
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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