I was so pleased to read that you have Dr's and nurses you like. That is so very important. There are many who post here that have had their Dr's tell them they're crazy, it's all in your head, etc. I'm sorry you have such a rotten condition to have to deal with, but I'm very glad you have a definite diagnosis. So many are in diagnosis limbo. I'll have to drop into the RSD forum from time to time and see how you are doing.
Hugs,