Welcome, davl45! I can definitely sympathize with your comment about others not understanding your condition. I'm got myasthenia gravis, the autoimmune disease that causes extreme muscle weakness, and for sure no one can "see" that your muscles are tired or weak. Have you found the spinal disorders forum yet? http://neurotalk.psychcentral.com/forumdisplay.php?f=22
There's also the chronic pain forum: http://neurotalk.psychcentral.com/forumdisplay.php?f=10
Feel free to post, read, comment, question, whatever. Hope to read more of your posts.
Hugs,