Good morning/afternoon for some. I am David from the UK (Sunny Glasgow to be precise).

I recently had a pretty bad seizure which resulted in a hospital stay and since I hhave had 3 MRI scans and an EEG. Seems I have extensive sarcoid in my brain following 5 years with sarcoid in the lungs and nose.

While I appreciate many of you have signficantly more severe issues than mine, I am still pretty scared as I have a young family and a business to run.

I have been told to go for a lumbar puncture which does not sound like a nice afternoon out!!

In short, do any of you have experience with Neurosarcoidosis and could you tell me about treatment, side effects and prognosis?

Thanks in advance.