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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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ol cs, RLSmi, Ron Hutton, and...
...others who are on here are "real" scientists or doctors. That is, they have credentials recognized by society.
How about the formation of a think tank made up of such pwp as members and the rest of us as associates? The group could function through issuing reports and position papers through the Net and media. Topics like the case for the role of the BBB in PD or the need to accelerate research on green tea or turmeric or choline etc.
Position papers on the need for a new way of crash testing promising things by pwp once toxicity was ruled out. Say 500 pwp taking standardized curcumin for a year and 500 controls. All filling out a monthly report. To hell with the FDA and such.
The associates must have some media veterans. Enlist them. Make it a good story. etc
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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