Scar thoughts as Fiona shares..... oh so on point.

Actually, along with Coral Toe, she and I are the only two of whom we are aware ever to be allowed to program ourselves. It was not so much the notion of writing logic strings or being up on C++ or any other language, for the computer used to program the battery unit was set with clear parameters which called only for input by the computer user.

Being a bit persuasive, I succeeded in ousting the rep from his chair since I am the only one who lives my particular pain. Those 1 to 10 metric charts of pain score style reports of life are not intuitive and rarely truly understood by the reader. I asked the rep "so, how do you have any clue what the stim might or might not do to my nervous system and the affect on pain?" He admitted it was all based upon my report..... ta da...... case won, he arose from his chair. being plugged in to the computer via my stim remote in a cradle, I assumed the position and with the guidance of the rep proceeded to set all of the programs to My Body, to My Rhythms, to My Nuances.

Result? I have never required a tweak session since then. EVER. I think Coral Toe is the same. Manufacturers are too much in the driver's seat. I even wrote an article for a medical journal on this phenomenon and my doc has never succeeded in getting it published. I even suggested he put it in his name and use me as a ghost writer since my doctorate is not medicine.... still no go.

Is it time to say to the medical durable equipment manufacturers..... and practitioners...... GET A CLUE???? I have written ad nauseaum on these pages promoting better patient involvement, all no no avail.

Good luck Mel, good luck indeed,
and my prayers.... of course,
mark56