Originally Posted by fionab

Just a thought as I'm no surgeon so please just consider this possibility.

Is it possible that the wrong nerves are being stimulated or scar tissue is being affected? I know when I have my lumbar SCS turned up too high in order to get more pain relief it actually causes other areas to start hurting, areas that had not been affected with lower stimulation.

Also, the battery can shift between surgery and being released from hospital or even soon thereafter. As I also have a cervical SCS,I have two batteries, one on each side. The cervical battery shifted after release from hospital and visibly sticks out at an odd angle which makes it difficult to recharge at times. Fortunately this is one time when being overweight has had its benefits because my extra fat has helped deal with battery movement. I have heard those who are on the thin side complain about the battery and it being painful sometimes. When I was going through recovery my battery sites were painful and had to allow time for areas to heal as I'm a slow healer.

I would wonder why they're putting you on Lyrica to deal with new issues post SCS implant rather than finding cause of said issues. If it is temp. until they can find the cause, that's one thing, but hopefully they don't mean this to be permanent solution.

As far as the reps. who do the tweaking, I have mixed feelings about them. I wish we were all as fortunate as Mark was and could "tweak" ourselves but his case is rare. I have found the reps. to be somewhat impatient at times and they can be pushy and seem to be uncaring about your pain. I think they are trained that finding the right "tweak" is the answer and I found myself often agreeing the new tweak was helping when it actually wasn't because I was tired of working with an impatient rep. I can understand they have to work with complaining patients in their job but if they cannot be patient and work with us when we are in pain, then they need to find another profession. If you find a rep. who works well with you I would ask for that rep. and only see that rep. if at all possible. In my dr's. office I never knew what rep. I was going to see and they all have their own way of doing things.

I hope you get some answers soon!