10 years is ridiculous, after all, this condition has been known for 150 years. Sometimes I get the feeling many doctors know what it is or have a hunch but blow many patients off because they do not want to deal with it. Without a diagnoses its easier for a doctor to make a claim that a patient is faking, somewhat, but many with a diagnoses have also been accused of drug seeking and "its all in your head" mumbo jumbo. As I've stated in other threads "Who the heck ever fakes this disease?" let alone most layman never ever heard of it. And if a fake did know about it, it would be one condition a faker would not even attempt!!