I am so sorry for you, with all the pain you mention I can feel it in my body just as you discribe. Whenever I hear of others pain it makes me feel so bad and wish I could help, although knowing Iam not much better then anyone else. I know how you feel when you feel embarrsed, when I go see movies and or go out and using a walker since I wa 22 and am now still just 25 I wonder how other think of me. But then I just say to myself on how much I have gone through and how strong we all are for being in the conditions we are but are still trying our bests to live life.
I am here for you and hope for pain relief!

Samantha