I also just finally got diagnosed and posted a thread double edge sword. I am also bothered to read that many can go into remission if it is treated early. Since I had docs thinking I was faking seizures and my pain now for almost 3 years, it is now going to be harder to treat. I had a seizure once in the bath and was drowning and my daughter saved my life and they still thought I was faking. Then they said it was conversion disorder and in my mind I felt they were still trying to tell me it was all in my head. I ended up with a really good psychiatrist who squashed all those theories. I really like my new primary care physician but even she has never heard of this disease and had to be taught. I hope she has also done her own research. I haven't seen her yet since I just got diagnosed but I plan on seeing her next week. I really do understand all of the emotions that comes with finally being diagnosed!!!!