Quote:
Originally Posted by Aussie99
7 whole years have gone by. Reading this thread was like discovering a time capsule. Life has changed so much.
Memories...like the corner of my mind...lol 
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Glad someone rediscovered this. Have those of you from this old thread had success? I have just come home from yet another neurologist appt, seems he basically said "we are at the point of diminishing return" in terms of tests. Its Idiopathic small fiber w autonomic damage, he suspects an autoimmune process, I did have slightly abnormal autoimmune antibodies during initial testing (dec/jan), but just finished a solumedrol infusion cycle w no success. He was intrigued by my newest symptom which happened during my visit, sudden swollen purple finger tips and palms, to match my periodic red toes, which I think provoked him to order a few more tests, CT scan for malignancies and addl autoimmune and paraneoplastic blood work. But it seems there will not likely be an answer. He is switching me from gabapentin to lyrica. Otherwise, seems time to start looking at alternative approaches. I've lost about 15 pounds along the way, so going to start exercise again too. Was a runner, feet hurt way too much for that, so considering swimming, and seems many of you have had success w yoga.
This forum is the most helpful resource I have found in 8 months of dealing w neuropathy, a word I didn't know 9 months ago! I am a positive person, 2 young kids, and still trying to work full time (more from home than office as I can't even put shoes on most days), and lucky to have an incredible, stay at home husband. I am determined not to let this ruin our life but it's changed dramatically.
Any more success stories would be really helpful and encouraging!!!