I got my final evaluation. All in all, I saw three separate neurosurgeons (including the head professor at the teaching hospital) who looked at my MRIs. All three had the same conclusion - no leak. I feel both relieved and upset. I'm relieved that I do not have something so debilitating. However, I also feel upset, because now I feel like I am stumbling in the dark, trying to put a name to my symptoms.

I re-visited the ENT today who originally suspected CSF leak to discuss the results. He seems to want to chase the CSF leak diagnosis even though three neuros said no. When I countered that it could be a sinus infection, he said that he saw no signs of inflammation of mucus buildup from the MRIs. I am to return for a sinus CT and possible camera roto-rooter up my nose at the ENT hospital here to see if there's a sinus issue, but I am fearful that will come back clean, and then I will truly have no answers...