Originally Posted by Brambledog

Hi Mel...

Mine began in my left knee in Aug 2011, now spread to my whole leg, both feet, left arm, spreading across my back....it's scary when it feels like its trying to take over I've no idea why it does what it does, or why some folk keep it isolated to one area and it spreads in others. Don't think the docs do either. It is shocking how fast your life changes, and I too feel that the me I thought I was has been lost. It's frightening all round, the pain and limitations, the fear of the future...

You will get some kind of handle on it and learn to cope, but I understand that six months of that much spread must feel insane. Don't try and reason too much, I doubt you've done anything to make it spread, I think you've just been incredibly unlucky. And there's always hope that it will stop and then go into remission.

Good luck and I hope things improve soon and the spread stops. You do end up thinking every new pain is the CRPS spreading, I hit my finger today and it hurt like mad, then went very red and burning and swollen and I immediately thought 'oh no, that'll be the next place then'. You can drive yourself mad because CRPS doesn't obey any laws or behave in one set way, you just manage it as best you can and try to keep positive.

Why us hey?!

Bram.