I, like Mia went a long time (years) before getting the correct diagnosis of PCS also. I am amazed after telling lots of different doctors about my concussion history from passing out and hitting my head on concrete so many times that they did not send me to a neurologist long ago. Especially after the MVA.
I wish I would of known to see a qualified neurologist/movement disorder specialist. I wish I would of known to get neuropsychological testing done. I wish I would of known of this support group and that their are others out there who understand and are going through the same thing. I have gotten the best advice on here and so much support and help with feeling not all alone in the world or like I am just extremely weird or mental. I wish I would of known about earplugs and white noise. I discovered sunglasses and meditation for myself. I especially wish I would of known not to take Tylenol and Lortab or Lortab and extra strength excederin together because it will cause you to overdose on Tylenol and cause liver failure. I wish I would of known to see a back and neck specialist and had MRI's done of both as well as my brain while I still had insurance. I wish I would of known about pain specialist doctors before. I wish I would of known what was going on with me and how to explain it properly to my family so they could help me because I was unable to help myself.
I am very grateful for all I have learned and how far I have come.
Brain