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Originally Posted by SFNgirl
Thanks Mrs.D for this info. Did you have general neuropathy symptoms and pain along w the lupus?
My doc ordered new labs for autoimmune antibodies, said a special order that will be sent out and will take a month or so to get back. Also ordered paraneoplastic panel and CT scans of chest and abdomen. He continues to think some type of autoimmune process, but steroid infusions did not help. I suspect we may never know but just will focus on pain management
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When this was brewing I had arthritis type symptoms, stiff neck, and generalized pain coming and going everywhere. I had a rash on both arms, for months, that never did anything...no itch no scaling, no broken skin, just ugly. Drug induced lupus is different from real lupus in that it comes from certain drugs... when the drugs are removed the lupus fades. It does not raise ANA levels either.
I had alot of mouth issues, swollen tongue, swelling gums, and canker sores that came and went. I had some sore throats and very stinging eyes. Once I stopped the offending drug, everything started to fade. I only have about 10% of the rash left now 2 months later. No more mouth issues.
The fingers were the almost the last sign though.
I've had PN for over 30 yrs...in feet and hands (carpal tunnel).
Most of it improved after my hypothyroid was fixed. The lupus things were different and really didn't involve my feet and hands very much. It was more full body. I still have some angioedema which comes and goes, but not like before.
My reaction was due to 2 things... the drug induced lupus + angioedema from the ACE inhibitor, so that confused things quite a bit.
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Weezie looking at petunias 8.25.2017
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