Originally Posted by Susanne C.

I agree with the above posters, the more info the better, as kids have a tendency to imagine it is worse than it it and you do not want them to be afraid. Also, you will need their help. Mine 14-29, 5 of them, the 3 youngest at home still. I am pretty disabled so they have to help, although their father helps a lot.

I have not been following your symptoms, Abby, any chance of yours being a hereditary neuropathy? I passed this on to my eldest son, 28, and he has trouble walking and extreme ankle weakness. The possibility of passing this on to a beloved child kicks this whole issue up in intensity. I m very thankful our two youngest are adopted.