Quote:
Originally Posted by mrsD
When this was brewing I had arthritis type symptoms, stiff neck, and generalized pain coming and going everywhere. I had a rash on both arms, for months, that never did anything...no itch no scaling, no broken skin, just ugly. Drug induced lupus is different from real lupus in that it comes from certain drugs... when the drugs are removed the lupus fades. It does not raise ANA levels either.
I had alot of mouth issues, swollen tongue, swelling gums, and canker sores that came and went. I had some sore throats and very stinging eyes. Once I stopped the offending drug, everything started to fade. I only have about 10% of the rash left now 2 months later. No more mouth issues.
The fingers were the almost the last sign though.
I've had PN for over 30 yrs...in feet and hands (carpal tunnel).
Most of it improved after my hypothyroid was fixed. The lupus things were different and really didn't involve my feet and hands very much. It was more full body. I still have some angioedema which comes and goes, but not like before.
My reaction was due to 2 things... the drug induced lupus + angioedema from the ACE inhibitor, so that confused things quite a bit.
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Thanks for the info, really appreciated. I originally found this forum from some threads on small fiber neuropathy from 06/07, and you guys (you, Glenntaj, and others) are so knowledgable and helpful. Best resource and advice I have found.
I don't think mine is drug induced, coming off the gabapentin now from 2700 level. Going to see if any different just taking the Tramadol and one Nortriptyline at night, since I don't think gabapentin worked at all and just makes me tired. May try lyrica. The pain is fairly consistent, moves between bad and terrible. Good days are those that just involve my feet and lower legs. But def going to read some of the helpful tips and alternative therapies suggested throuout this forum, and continue to try to live as normally as possible. Seems you all are staying positive and in control of your issues, something I haven't felt since this has happened. That really seems to be the secret to the success stories here.
Thanks to all for helping those of us newbies not lose hope!