Sorry you are going through this. It was hard for me to learn that even though Mestinon made me feel better, it did not mean that I could do more. It took me a long time to realize this, that every time That I felt good and did more, I had an activity "hangover" that made me weak for days. So now I pace myself and schedule an activity only every other day and do a full day of rest in between.

Lowering your life expectations is very hard. I find having a routine helps, even though that routine does not accomplish much. I can only do a short walk with my dog on good days. I play fetch with her from the recliner, the dog has adjusted to my inactivity. I have some sedentary interest such as knitting and sewing that I can do for short period during the day.

I spend more time trying to prepare healthy nutritious foods. I connect with friends over the internet and phone. I try to make my activities really count, something I really enjoy.

Hope this helps
kathie