Have you looked into trying 3,4 dap? It is used to treat Lems, but has also been proven to be helpful with CMS. I have Lems and hopefully will be getting my Dap this week.
Here is one reference to its use with CMS, but I have come across many more in my reading on Lems.

http://www.ncbi.nlm.nih.gov/books/NBK1168/
By the way, I have had depressed breathing and a weak and ill feeling in the pesticide department in stores for a long time. I never knew it had anything to do with an illness. Thought maybe I was part bug or something....