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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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KayoKelly, I am so sorry you are going through this with your health insurance. If I were you, I would ask for a Single Fiber EmG and anti-musk antibodies. About 10-20% of MGers are seronegative like me. Single fiber EMG is the diagnostic test for sero-negative MG. It is important to know if you are MUSK positive or not, because MUSK MG responds differently to treatments. MUSK MG does not respond as well to mestinon. And there are other treatments besides mestinon.
How much mestinon did you take and how often? They started on me on 30mg for a week 2 times a day and I felt no difference. When I went up to 60mg 4 times a day, I began to feel the ups and down cycle with Mestinon.
Let me know how you do
kathie
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