Ooooh, ouch, ouch and more ouch!
I feel for ya! I've had it but it was infrequent bouts lasting only for a bout a day a few times a year. But there's not question what it was... there's no other pain like it.
Sorry, I can't help with respect to pain meds... neurontin maybe?
I really hope you find some answers... this is one of the worst symptoms we can have I think.