Quote:
Originally Posted by mrsD
I sometimes get internal vibrational type tremors in my abdomen before my intestines start acting up into cramping or diarrhea.
This was very severe when I had my drug reaction which caused angioedema + a lupus reaction. The angioedema causes the internal organs to swell, and this I guess causes compression of various nerves. It didn't happen all the time, just when I was going to get an "attack" of pain and diarrhea.
I think I mentioned angioedema to you before? This can be inherited or acquired (from ACE inhibitor drugs), or both, which my doctor now thinks I have. I have not had internal symptoms of vibration since I stopped that evil drug.
I am not surprised that doctors gave you a hard time...I think most of the time they have no clue about suffering at all!   |
Hello MrsD,
Thank you again so much. You are helping me more than any UK specialist. Im actually going to appointments and challenging them with your wisdom.Its amazing what a little knowledge can do - it really throws them lol!
I think angioedema must be the cause. As you know im getting progressively worse whilst they all 'make a decision' ,which is hard for them since my symptoms are apparently 'atypical' Ive gone to them with photos and pain diary asking them whether aside PN could I have erythromelalgia - which might explain my ''atypical PN symptoms' of redness, swelling flare ups extremities and now areas on body(face, legs, knees). My 'freckles' possibly arterial insufficiency as you say(will load photo of these asap for you).
Amongst other things, for 4 months my legs have been so swollen and stiff i can barely walk. Im far from stupid but my cognitive functions are much impaired from drugs and constant pain. I dont know how to think let alone what to do anymore!.
Stumped over the red flare ups they are now suggesting dermatologist.... in UK thats for skin complaints , which i have not got. Ive argued and managed to get visit to vascular specialist - next month. Only 3 EM specialists in entire UK. Do you think EM is possibility Mrs D? May i ask what you know about EM.
Thank you again for your concern for all of us and such compassion and kindness . You are truly some kind of guardian angel.
God bless you MrsD
PS: worse at night and around 4pm - cortisol thread - amazing. Thank you .UK specialists couldnt fathom why