Hello! FindingMyWay!

I've had epilepsy seizures for 37yrs now, and I have felt like I've been through the ringer, with all the diff. docs, and meds I've taken over the yrs. I have gran mals, parcial, and pedimal sz. I was on 7 or 8 diff. meds throughout the yrs. until I heard about the VNS. which is for sz. I was doing really well for myself, because I went down to 3 meds after they put that machine in my chest. I was living by myself, had a job, and was going to college.

Then 6yrs. after I had the VNS my batteries went out on the machine without me knowing, and how long it had been out we had no way of knowing. It took about 6 to 8 months for them to even be able to get me scheduled in to get the batteries replaced. After they were replaced everything went down hill, I was having my gran mals one right after another. So they tried me on a new med. which started causing me to halousinate, and my family had to come together, and help out with me, I was fired from my job because I was considered a high risk, and my college said I couldn't continue my classes, because of the same reason.
One of my docs recommended to my parent's that I be put on disability, due to my situation. He saw what I was going through with the halousinations, and what my parent's, were dealing with, emotionally with me. So I've been on disability ever since, I still have the sz like I've been having. So I have my good, and bad days, but thanks to God I'm not halousinating anymore.

I hate being on disability though because believe it or not I was happy at my last job, which was working for the school district, and I was taking classes to be a teachers assistant. I hope you don't take offense to my advise, but maybe you should try to find a doc that can help you, just like my doc helped me. If anyone can help you get help faster it can be him/her, good luck, and God! Bless!