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Old 04-17-2013, 08:34 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Excuse me but WHAT THE FLUFF?!!!! The muscles that "focus" eyes are most definitely affected by MG.

Have you seen a neuro-ophthalmologist? If not, try to find one and go see them. They don't normally do the regular "eye" work for glasses. Or see a good regular ophthalmologist for an eye checkup and then ask them to refer you to an N-O.

No offense to your neurologist but his statement is not remotely scientific. Maybe he feels out of his league when it comes to technical eye issues.

When you get your eyes checked, you should know that the drops they give make MG worse. Atropine is often given, which does the opposite of Mestinon. Between the Atropine and numbing drops, my MG gets worse for a couple of days after an eye check.

Do you have glasses now? Good ophthalmologists can get a correct prescription for you even if your MG is bad. They have their ways. And, yes, do take Mestinon before an eye appt.

Are you sure you only have ocular MG? Just asking.

I hope you get answers to all of your questions by your doctors. An N-O is a very good doctor to see because they can assess your ocular MG and give you tips. And then maybe the N-O can send a detailed description of what eye muscles are affected by MG and how they cause both double and blurry vision to your neuro. Maybe it'll bring your neuro's care into focus!


Annie
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