Junior Member
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Join Date: Nov 2012
Posts: 34
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Junior Member
Join Date: Nov 2012
Posts: 34
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It's been awhile!
Hi Eveerne -
I wanted to check in on everyone..... So thankful for all the interesting information you posted Mokey. I have a question in regard to sound sensitivity. When I am in a noisy environment, I feel like I become a bobble head doll. OR the person I am talking to is literally moving like a bobble head doll...... Noise makes me even more dizzy and off balance.... especially background noise at a restuarant or something like that. I am wondering if you all have that same response...... does it hurt your ears or do you get the bobble head effect? I was reading that this is called the Tullio Effect. Just to recap my symptoms, I always feel off balance/disequalibrium 24/7. I have light sensitivity to flourescent lighting and am dizzy. I have no headaches. In addition since the accident I have a constant fullness in my left ear.... constant for 8.5 months. Now I am also experiencing ear pain in that ear and can hear my heart-beat in that ear, cannot even hold up a phone to that ear because of the pain it will cause. Also when I leave places with background noise, my ear throbs for hours????? Do you have this too Mokey?? At any rate..... after reading about the Tullio Effect, I saw a Neuro-Otologist today. He thinks I may have a Perilymph Fistula in my left ear...... I am having a barrage of tests done Friday Ecog and a VEMP test. I guess this type of ear issue can also cause light sensitivity. Anyone else eventually see a neuro-otologist to see what in the Hellen is going on?
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