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Old 04-17-2013, 10:24 PM
gr8ful gr8ful is offline
Junior Member
 
Join Date: Feb 2013
Posts: 81
10 yr Member
gr8ful gr8ful is offline
Junior Member
 
Join Date: Feb 2013
Posts: 81
10 yr Member
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Something seemed wrong when my neuro said the focusing muscles aren't affected by MG. My focusing muscles seem to be affected. Sometimes I have to shut one eye or do other tricks to see things. My doc seems very good. I may not have asked the question well or perhaps didn't hear the answer well. I'll ask again.

I do wear glasses and probably need a new prescription. My ophthalmologist was the 1st doc to suggest MG and a subsequent blood test confirmed antibodies. This ophthalmologist may be an NO. I'm not sure. I've been seen twice and had my prescription measured with and without mestinon and the results were different. If I'm going to shell out money for a new pair of glasses, I don't want the MG to mess things up. I'll have to discuss with the ophthalmologist and make sure they know how to measure someone with MG with good results.

My MG seems to be almost 100% ocular. I had EMG and SFEMG testing done and they said they had trouble measuring any MG effects in muscles other than my face. I feel other symptoms that could be generalized MG but I can't tell for sure if they're from MG, or worry, or lack of exercise, or something else. This is a sneaky disease. I keep telling myself, if its hard for me to discern, the symptoms aren't so bad and I should feel good about that. Anyway, my easy to discern symptoms are ocular and I hope that doesn't change. I've been lucky so far but I was only diagnosed a few months ago and the disease unfolds in its own way in its own time.

Thanks for the comments. I'm praying for the best for everyone.

Last edited by gr8ful; 04-18-2013 at 09:44 AM. Reason: grammar
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