Bram, I am so sorry. My 14 year old daughter also has her RSD in her feet and toes. Are your toes disfigured? Honestly the only thing that has helped my daughter is therapy(PT,OT,Psycho therapy) and IV KETAMINE. She has had 14 hospitalizations, has been on every med imaginable and nothing else works. She takes Ativan to help her cope with the pain, and that helps. I just recently consulted a podiatrist in Sacramento, CA, that has worked with RSD in the feet/toes and he recommends a pulsed magnetic therapy. I have not researched it, but it is non invasive and could not hurt to try. My daughter has had every type of block, infusion, steroids, IVIG but the combination of the 2 things has worked for us. Although it is not a permanent fix, she gets anywhere from 6-8 weeks of relief and then is back in the hospital doing another “tune up”.
Don’t give up. You can fight this god awful disease!!!!

KAS