Quote:
Originally Posted by Quandry
Susan, I'm very sure that exercise won't help the palate. I'm usually affected when I've done too much. I have to get a good night sleep to get some relief. Is the weakness all day or more prevalent in the evening?
Annie, I find myself clenching my jaws at night while sleeping and have tried to relax my jaw during the day, I catch myself sometimes during the day clenching, but relax my jaw as soon as I'm aware. I'm not sure if the clenching is MG related. I was told it's Bruxism. If I gently keep my teeth together, my teeth chatter. So, why does my palate and bulbar muscles get weak at night instead of morning?

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Have you talked to your neuro about a plasma exchange? Or an ivig? I know when I was down the plasmapheresis; that saved me from a peg tube. O that my stomach is in the wrong place too. Surgury failed and did not want the inovasive surgury. Belief in God that he makes all things possible is what kept me from falling and giving up.