Quote:
Originally Posted by Susanne C.
I have axonal sensory motor neuropathy, both large and small fiber. In my case it is hereditary, CMT, and it is progressive, as the nerves die back the muscles start to die as well and you develop increasing disability. For me the numbness is moving toward my hips, I cannot move my toes, and my feet and ankles are losing strength. It is a slow but inexorable process. |
Susanne, I am so sorry to hear this. It sounds as though your progression is far worse than mine since you probably developed it early on. For now, my med--Gabapentin--is keeping it under control. I just wonder if the process, for me, will be slow as well. I have no ankle reflexes, and I'm having trouble knowing where my feet are since I'm sometimes unstable.